Hey Everyone!
I'm Wyatt and this is my story of the "Mystery of the Missing Chromosome".
My family thought maybe other kids with chromosome disorders could learn from all our experiences. Plus, I'm a big ham and love all the attention!
"And you may ask yourself-Well...How did I get here?"
- Talking Heads, Once in a Lifetime
I was born October 12, 2010 and my mom Lexie, my dad Michael and my big brother, Carter were really happy that I joined the family! Although there were a couple nervous moments during the C-Section that brought me out here, all was well and I went home with the folks after a few days of R&R at the hospital.
Compared to my big brother, I was a pretty good baby (he's a maniac), although I spit up an awful lot so Mom and Dad tried lots of different formulas. Have you ever tasted Soy formula? Man, it's no wonder we cry a lot! Gag me. Anyway, maybe that was the first indication they had that I was going to be a handful!!
Pretty soon, more and more things kinda seemed out of whack. Instead of sitting up, I fell over. I had a really hard time getting my arms loose enough beneath me to crawl, so I rolled around a lot instead. My eye was lazy and my fingers looked a little odd and didn't open up quite right. "What the heck?" my folks asked the doctor, "Is there something going on?" My first doctor wasn't too concerned so Mom finally got mad and found someone to listen to her. She has something called, "Mother's Intuition", which they tell me is pretty important and you should always listen to. The first doctor didn't know that, I guess. It all worked out because my new and totally awesome doctor said, "Whoa Nelly! What's Going On?" and I was sent to Stanford for Genetic Testing. BINGO! A chromosome disorder! Who would have known?
The following pages we put together to share the experience of testing, diagnosis, therapy and basically putting the pieces of the puzzle together that makes me the happy-go-lucky guy I am today! We hope that our story helps some other little kid someday!
- Talking Heads, Once in a Lifetime
I was born October 12, 2010 and my mom Lexie, my dad Michael and my big brother, Carter were really happy that I joined the family! Although there were a couple nervous moments during the C-Section that brought me out here, all was well and I went home with the folks after a few days of R&R at the hospital.
Compared to my big brother, I was a pretty good baby (he's a maniac), although I spit up an awful lot so Mom and Dad tried lots of different formulas. Have you ever tasted Soy formula? Man, it's no wonder we cry a lot! Gag me. Anyway, maybe that was the first indication they had that I was going to be a handful!!
Pretty soon, more and more things kinda seemed out of whack. Instead of sitting up, I fell over. I had a really hard time getting my arms loose enough beneath me to crawl, so I rolled around a lot instead. My eye was lazy and my fingers looked a little odd and didn't open up quite right. "What the heck?" my folks asked the doctor, "Is there something going on?" My first doctor wasn't too concerned so Mom finally got mad and found someone to listen to her. She has something called, "Mother's Intuition", which they tell me is pretty important and you should always listen to. The first doctor didn't know that, I guess. It all worked out because my new and totally awesome doctor said, "Whoa Nelly! What's Going On?" and I was sent to Stanford for Genetic Testing. BINGO! A chromosome disorder! Who would have known?
The following pages we put together to share the experience of testing, diagnosis, therapy and basically putting the pieces of the puzzle together that makes me the happy-go-lucky guy I am today! We hope that our story helps some other little kid someday!
