Wyatt's Adventures with Chromosome Deletion 3p14.1p13
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NEW GLASSES ARRIVED!  AND I LOVE THEM!!

1/19/2013

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I finally got my new specs!  Aren't they awesome?  After not having them for awhile, I am super grateful and not pulling them off as much.  It actually is pretty cool to see where I'm going!  Once again, THANK YOU to all the secret elves who helped me replace my glasses. 

Lots happening lately!  Check out my therapy page for some new videos about feeding!  I'm getting the hang of the spoon thing!  Here are Mom's notes: "Excited to shift our focus to feeding, oral sensitivities, and his issues with texture! Our therapists have the best ideas like when he becomes resistant to using the spoon tapping his elbow is like a prompt..he automatically went back to feeding instead of fussing! Definitely has issues with texture from day one as he even grimaced on breast milk.  The therapist mixed goldfish in apple sauce to get him used to/introduce multi-textured foods!..Mommy is learning as much as Wyatt.  it's great!"

Also, we found a program in Monterey for my puppy, Holly, to learn how to become a service dog for me.  Is that cool or what?  She is at the perfect age for training and will start in a month.  I wonder what tasks she will be able to help me with?

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ELECTROENCEPHALOGRAPHY  (Can you say that ten times fast?)

1/10/2013

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Hi friends!  Another wild exciting day at Lucile Packard Children's Hospital!  EEG TEST!  First of all, let me tell you how Mom was instructed to keep me awake the night before so I would be sleepy for the test.  She is usually trying to get me to SLEEP so this whole idea was a little weird.  We made it to the hospital early so I was able to show the ENTIRE first floor how awake I was by running full speed through the halls for 45 minutes!  Yee Haw! 
The fun was short lived, however.  I should have known!

Wikipedia says: "Electroencephalography (EEG) is the recording of electrical activity along the scalp. EEG measures voltage fluctuations resulting from ionic current flows within the neurons of the brain.[1] In clinical contexts, EEG refers to the recording of the brain's spontaneous electrical activity over a short period of time, usually 20–40 minutes, as recorded from multiple electrodes placed on the scalp"
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To start, I was pinned down by some very nice (?) EEG technicians who glued electrode things all over my head with wires connected.  I don't care how tired a guy is, this was a bit upsetting!  I cried pretty hard during this process and when I was all glued up and given a turban, Lisa, the technician, dimmed the lights and I went right to sleep!!  Finally a nap! 

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Lisa monitored my brainwaves for 15 minutes during sleep and Mom and Gramma got to see how the whole thing worked . 

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This would not have been so bad, but after the first 15 minutes, they woke me up.  Yikes!  You have GOT to be kidding me!!  Apparently, testing is done in the awake state and also with a strobe light (that was cool) and with me awake, but with my eyes closed.  Luckily, Lisa put on some cool music and I was ok for the second part of the test.  Although I really wanted to go back to sleep!  It went pretty quickly after that, Lisa gave me a sweet bear to take home for all my trouble, and we were back in the car for the ride home before long.  Mom can expect results back in a week or so to see if there is any signs of seizure.  An interesting test but man, am I glad that it's over!

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    My name is Wyatt Hawkins and my Mom and Gramma are helping me share my adventures.   Typing isn't my thing....YET!

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