Good News Everyone!  Here is Mom's report after our trip to Lucile Packard Children's Hospital for the dreaded swallow tests!  Guess what!  For now, no more Barium concoctions that they try and pass off as "milkshakes"  Soon, no more thickener in all my drinks!  Yay!

 "Stanford trip for a fluoroscopy! I literally wanted to jump up and down it went so well (as far as the results 😁Wyatt still isn't fond of the procedure). So far no signs of aspiration or silent aspiration!! One spot where he penetrated but that's all they've seen so far! Night and day from our last one less than a year ago which had horrible results. She gave us permission to lessen the amount of "Thick It" in his cup and to start introducing open cup and water. I could cry!  Feel so blessed.. Follow up with gastroenterology in a couple weeks to discuss results and his reflux!!  We have such an awesome team of doctors!"

Hey There Friends!  How have you been?  I love to hear about how my friends are doing but it's been so BUSY around HERE that I haven't had time to post - so here are some updates:

BASEBALL WAS A BLAST!

So how does a kid like me get so lucky?  Not only am I getting more and more handsome every day, my natural athletic ability is starting to shine through!  Thanks to the Challenge League for making it possible for me and my peeps to hone our skills and have a ton of fun.  I met friends of all ages learning to play and I had a "buddy" who played alongside of me and helped me to not feel nervous and stuff.  We even got to play with the high school kids AND a game against the firemen. (They need practice).

So what were some of the challenges for me to play baseball?  Sometimes I get bored standing in one place.  I need to move around, but I learned from my buddy to stay in my position...mostly.  I also can get edgy when there is a lot of stimulation and Mom had to step in quite a bit.  I get a bit fearful and emotional, but I noticed lots of the kids on the team, no matter what their disability, had that same problem, too, and everyone was patient with us.  By far, there was way more fun than frustration and I loved it!!  Man, can I hit that ball!  Mom was thrilled that I can catch, too.

"Wyatt met a new milestone!!! At 41/2 he can officially catch a ball! This takes not only a huge amount of visual concentration but physical! Wasn't too long ago that he couldn't even bring his hands to midline..so excited for him! "

To see me in action..check out this video https://www.facebook.com/video.php?v=10206546594170557&l=2744740111964382835

You would think with all my hard work this year I would get a vacation, right?  BUT NO!  Hahahahaha!  Guess who is sentenced to summer school!  Actually, it is really exciting because in the fall, when I turn 5, I am going to be going to REAL KINDERGARTEN!  The plan is to be in a Special Needs class for part of the day to practice skills and then in a "normal" kindergarten for part of the day to be social and learn some of the stuff those kids are learning.  I am so excited!  Especially about the social part, I make friends really easily and join in pretty well with everyone.  Here is a nice thing my Mom said about me on Facebook,

"For the 3rd time in the past couple weeks someone I never met came up to us while out and about to say hi to Wyatt! Couple teachers and a fellow coach..I love it. It's a reminder that while he's out at school, baseball, therapy, horseback etc.. not only is other people touching his life but he too is touching other peoples lives. He may not be able to do things others his age are doing but I can't help but feel like he's doing something bigger! I see him spread hope, joy and love and I know that's because others are spreading it on to him. Thank you to all who support Wyatt from the bottom of our hearts!"

So for the summer, I will continue to practice my life skills and prep for the "big time" school.  As long as I get some breaks.  Those fish won't wait forever, you know!

So, yeah, I'm still a bit on the short side, but I am no longer as scrawny as I was!  I have been eating everything in sight and growing more and more solid!  This has been proven by the noises Mom and Grandma make when they try and wrestle me into the car seat or carry me around for any length of time.  Ugh!  Sissies.

My therapy with the horses continues and seems to really help to stretch my legs and hips.  I just think they're cool and I like flirting with the ladies there.
Mom reports:
"We added an extra day a week of horseback today! Wy is going to start to learn to groom and will gradually learn to tack and lead the ponys:) So good for fine and gross motor skills as well as getting bonding time with the horses!"

Ever tasted hot sauce?  Nasty stuff!!  Apparently it's the brilliant solution my parents believe may stop me from saying bad words.  Honestly, I'm just practicing my verbal skills!  Part of the "known" characteristics of the FOX P1 deletion is lack of complete sentence structure, one or two word formations being an expectation.  Well, perhaps that may be partially true at this time for me but, man, if you are gonna spit out just a couple words then make them shockers, right?  Especially in public.  You should see the look on Mom's face.  Hilarious.  Actually, I can string together a ton of phrases and do not feel limited to single words at all.  What are they thinking?  I think I am really, really progressing with speech now!  And I am brilliant when it comes to remembering words of songs.  I think that helps me learn.  Since my big brother Carter is learning to read, I get the benefit of many, many new words and sentences being repeated over and over.   Hint, hint..parents, do this with your kid no matter what their abilities are.  You may just be surprised!

This is really important advice from me to you, whether it's with speech or whatever.  Chromosome disorders are unique to each kid.  There simply is no standard and no average.  Don't ever let any doctor or therapist tell you that you won't be able to do something.  They don't know it all!  Just keep trying!  Why not?
This is me wearing my blue ribbon for Chromosome Disorder Research!
Wear That You Care!