It's pretty wild to think about how much has happened since my diagnosis a year ago. Last November I was just getting the hang of sitting. In fact, I could not get from a laying position to a sitting position on my own. I could not roll or crawl. I was not babbling as much as I am now. I could not lift my arms above midline. My fists were so tight I opened my fingers very little, and nobody even knew about my aspirating! Initial testing showed me to be operating at about a six month old level! Holy Cow! When I think about all that we have accomplished in just a year! Pretty darn fantastic! Here is a photo of me at therapy, running around and playing ball with my OPEN hands! All the hard work has really paid off!
Mom says we are not done yet, however. No rest for this little guy, I guess! That's ok. When I slow down, they have time to dress me up in silly outfits. What is the purpose of a tie? It's like a very skinny bib!
The next adventure for me will be an EEG scheduled by the Neurologist over the next couple weeks. Mom & Dad have noticed a few times lately when my eyes look sort of odd, perhaps like I'm daydreaming, or staring off into space. Because of my high risk for seizures with this Chromosome Deletion, it is important to make sure I'm not experiencing mild ones. So far I have been very blessed in that I have not had this issue to work on and we are all really hoping that it stays that way! I also have a BAD flu, so perhaps my staring is related to my queasiness. Always better to be safe than sorry. Each time we do another type of test, it sometimes feels like a real pain in the diaper region. But with very few cases to compare my experience against, we are CREATING knowledge as well as ANSWERING QUESTIONS. Bring it on, Doc! Give me one more opportunity to show you that I'm doing great!
The next adventure for me will be an EEG scheduled by the Neurologist over the next couple weeks. Mom & Dad have noticed a few times lately when my eyes look sort of odd, perhaps like I'm daydreaming, or staring off into space. Because of my high risk for seizures with this Chromosome Deletion, it is important to make sure I'm not experiencing mild ones. So far I have been very blessed in that I have not had this issue to work on and we are all really hoping that it stays that way! I also have a BAD flu, so perhaps my staring is related to my queasiness. Always better to be safe than sorry. Each time we do another type of test, it sometimes feels like a real pain in the diaper region. But with very few cases to compare my experience against, we are CREATING knowledge as well as ANSWERING QUESTIONS. Bring it on, Doc! Give me one more opportunity to show you that I'm doing great!
RSS Feed
