Hey everybody! It's me, Wyatt! Guess what? There is a really cool event coming up that helps people understand a bit about how rare and unique genetic diseases are and how important sharing information and research is for all us special little people (and special big people too). Check out the website that explains more about the event and other cool stuff! My mom is working with other nice folks at Starbucks to participate in this event in a big way!
http://globalgenes.org/world-rare-disease-day/
"World Rare Disease Day World Rare Disease Day is an annual observance held on the last day of February (February 28th or February 29th in a Leap Year) to raise awareness for rare diseases and improve access to treatments and medical representation for individuals with rare and genetic diseases and their families.
The sixth annual World Rare Disease Day will be held on Thursday, February 28, 2013. On this day, various activities take place in the United States, Europe, Russia, Japan and elsewhere around the world."
"World Rare Disease Day World Rare Disease Day is an annual observance held on the last day of February (February 28th or February 29th in a Leap Year) to raise awareness for rare diseases and improve access to treatments and medical representation for individuals with rare and genetic diseases and their families.
The sixth annual World Rare Disease Day will be held on Thursday, February 28, 2013. On this day, various activities take place in the United States, Europe, Russia, Japan and elsewhere around the world."
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