OH MY GOSH! WHAT A BUSY WEEK! I know I don't sleep much, but man could I use a good nap! We started on Monday with a visit up to Lucile Packard Children's Hospital to visit with the Genetics Team! HOW APPROPRIATE since Global Genes Day is on Thursday this week! My mom asked lots of questions and gave them lots of information as to my physical and mental development. They talked about how important it is for kids like me to be registered in global databases so hopefully (fingers crossed) we will find kids with similar deletions and someday a Case Study can be published, which will provide doctors from all over the world with specific information about what a deletion at 3p14.1p13 means.
THEN, on Wednesday, we went BACK up to Stanford to have what we hope is my last big test! The Neurologist scheduled an MRI to see what is going on in my brain and how it is growing and developing! I hope they are ready to see some seriously amazing stuff in there! We will have some results in a few days. It should be interesting! As for me, THANK GOD it's over! You know they wouldn't let me eat all morning again!! Do I LOOK like I need a diet?? Holy cow!! That didn't stop me from running around like a madman and flirting with the nurses (see the photo above). No Sir, a guy has gotta have his fun!!
THEN, on Wednesday, we went BACK up to Stanford to have what we hope is my last big test! The Neurologist scheduled an MRI to see what is going on in my brain and how it is growing and developing! I hope they are ready to see some seriously amazing stuff in there! We will have some results in a few days. It should be interesting! As for me, THANK GOD it's over! You know they wouldn't let me eat all morning again!! Do I LOOK like I need a diet?? Holy cow!! That didn't stop me from running around like a madman and flirting with the nurses (see the photo above). No Sir, a guy has gotta have his fun!!
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