Yesterday was SO exciting! Mom took me back to the place it all began! We saw the team at the Santa Cruz satellite office of the Lucile Packard Children's Hospital High Risk Infant Follow Up program. It was because of their initial evaluation that I was sent to Stanford for genetic testing! Whew! Thank goodness they were on top of things!
When we saw them last August, I was almost eleven months and we were told I was acting like a three month old. (I've seen some adults like that, so what's the big deal?). I could not sit up or hold my own bottle and I had trouble focusing my eyes. I spit up a lot. I had issues. Yesterday I was able to strut in there and show my stuff! Not only can I sit up...I'm rolling all over and can almost crawl! Not only can I hold a bottle...I'll throw it at you if I'm in the mood! My glasses have helped me to see things that were only blurry shapes before. We are working with my food and liquids to make sure I'm able to swallow and digest properly. Let me tell you, I think I blew them outta the water when they heard I can say SEVEN words! CAT CAT CAT CAT CAT! UP UP UP UP UP! Damn, I'm good!
The team at the Santa Cruz office was very proud of me and said I am most likely at a nine month old level. Gramma says, "POOH, He's almost ready for high school". Either way, it felt good to share our successes and it's exciting to think about what I might be doing on our next visit! I sure am glad that these folks pointed us in the right direction! I'm so lucky!
With that trip under our belts, TODAY we jet pack up to Stanford for my Upper GI test. It's important to make sure that all my parts are in working order for eating. The doctors want to find out more about why I'm aspirating. They tell me it's just not cool to have bits of food travel into your lungs when you are chowing down. Is there anything about the shape of my esophagus which is causing problems? Can this be fixed, will I outgrow this stuff, or do I need to learn how to deal with it? With any luck, another mystery will be solved! The drive to Stanford is a little over an hour each way, but Mom and Gramma are really silly and we have a lot of fun on our road trips. Sometimes Dad or Auntie Nana come with us and we really party! Plus, the nurses up at Lucile Packard are really SWEET! Ready or not, here I come!
When we saw them last August, I was almost eleven months and we were told I was acting like a three month old. (I've seen some adults like that, so what's the big deal?). I could not sit up or hold my own bottle and I had trouble focusing my eyes. I spit up a lot. I had issues. Yesterday I was able to strut in there and show my stuff! Not only can I sit up...I'm rolling all over and can almost crawl! Not only can I hold a bottle...I'll throw it at you if I'm in the mood! My glasses have helped me to see things that were only blurry shapes before. We are working with my food and liquids to make sure I'm able to swallow and digest properly. Let me tell you, I think I blew them outta the water when they heard I can say SEVEN words! CAT CAT CAT CAT CAT! UP UP UP UP UP! Damn, I'm good!
The team at the Santa Cruz office was very proud of me and said I am most likely at a nine month old level. Gramma says, "POOH, He's almost ready for high school". Either way, it felt good to share our successes and it's exciting to think about what I might be doing on our next visit! I sure am glad that these folks pointed us in the right direction! I'm so lucky!
With that trip under our belts, TODAY we jet pack up to Stanford for my Upper GI test. It's important to make sure that all my parts are in working order for eating. The doctors want to find out more about why I'm aspirating. They tell me it's just not cool to have bits of food travel into your lungs when you are chowing down. Is there anything about the shape of my esophagus which is causing problems? Can this be fixed, will I outgrow this stuff, or do I need to learn how to deal with it? With any luck, another mystery will be solved! The drive to Stanford is a little over an hour each way, but Mom and Gramma are really silly and we have a lot of fun on our road trips. Sometimes Dad or Auntie Nana come with us and we really party! Plus, the nurses up at Lucile Packard are really SWEET! Ready or not, here I come!
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