Well hello there, friends! How is everyone doing? We have been busy as usual and I am especially settling into a routine of pushing my boundaries, finding my voice and asserting my likes and dislikes STRONGLY. Ha ha ha ha..the terrible twos have nothing on the terrific threes! Mostly I am extremely happy, adventurous and loving, but I think exploring my testy side is putting Mom through her paces some days.
Speaking of Mom, she recently wrote a poem that I wanted to share with you. Since I'm a kid, I usually just worry about my next snack, what I want to get into next, and who is available to hug me, but I know Mom and Dad often think about what is next for me. Will I ever be potty trained? Will I go to kindergarten in a regular school or will I do better in special ed? Will kids tease me? Will I get my feelings hurt? How will I do in the "real world"? The future is so totally uncertain with chromosome deletions. I try and tell Mom it will be ok, that we need to live in the moment, but I see that she gets scared. Here is her poem:
I am a mother, I am strong
Knowing our journey is not the same
It's going to take longer to get to our destinations
Truly blessed for milestones reached along the way
I am a mother, I am strong
Though sometimes I feel alone and weak
Not wanting to bug anyone with my problems
I cry it out, stand up, and dust off my knees
I am a mother, I am strong
Though I may not look that way
No sleep, no shower, no makeup
Maybe another day?
I am a mother I am strong
And I will put up a fight
Lord help the doctor who questions my knowledge of my child
It's like a sixth sense..don't even try
I am a mother, I am strong
learned to fight back the sobs
while holding them down during procedures, being put under
screams during therapy..I know it's for the best and everyone is doing their job
I am a mother, I am strong
Even on my darkest days
one hug from little arms, one 'I love you'
Reminds me no matter what it will be okay
Speaking of Mom, she recently wrote a poem that I wanted to share with you. Since I'm a kid, I usually just worry about my next snack, what I want to get into next, and who is available to hug me, but I know Mom and Dad often think about what is next for me. Will I ever be potty trained? Will I go to kindergarten in a regular school or will I do better in special ed? Will kids tease me? Will I get my feelings hurt? How will I do in the "real world"? The future is so totally uncertain with chromosome deletions. I try and tell Mom it will be ok, that we need to live in the moment, but I see that she gets scared. Here is her poem:
I am a mother, I am strong
Knowing our journey is not the same
It's going to take longer to get to our destinations
Truly blessed for milestones reached along the way
I am a mother, I am strong
Though sometimes I feel alone and weak
Not wanting to bug anyone with my problems
I cry it out, stand up, and dust off my knees
I am a mother, I am strong
Though I may not look that way
No sleep, no shower, no makeup
Maybe another day?
I am a mother I am strong
And I will put up a fight
Lord help the doctor who questions my knowledge of my child
It's like a sixth sense..don't even try
I am a mother, I am strong
learned to fight back the sobs
while holding them down during procedures, being put under
screams during therapy..I know it's for the best and everyone is doing their job
I am a mother, I am strong
Even on my darkest days
one hug from little arms, one 'I love you'
Reminds me no matter what it will be okay
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