



May I have my steak medium rare please?
Wyatt's Adventures with Chromosome Deletion 3p14.1p13 |
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![]() Holy Toledo! Am I glad THAT'S over! Yesterday we reported to Stanford for what we thought would be another easy test. WRONG! First of all, they wouldn't let me EAT all morning and were running an hour late. I was really ticked off and cried my you-know-what off. Did it help? NO! ![]() Then we took abdominal x-rays in one room, then went in for the delicious BARIUM bottle in another room. I was so starving even THAT tasted fantastic! I was told there would be steak and what do I get? Liquid CHALK! Yikes! So while Mom and some big guy who looked like a nightclub bouncer stretched me out on a table, Gramma held the chalk bottle for me and the doctor took at least a million pictures of the barium going through my system. They wanted to check and make sure my food goes the route it's supposed to and there aren't any abnormalities in the shape or connection of all my parts in there. Especially the esophagus because the FOX P1 deletion, which is part of my chromosome disorder, is notorious for misshaped ones. MEDIEVAL TORTURE DEVICE - I HAD MY KEYS IN HAND FOR A FAST GET AWAY, BUT THEY TOOK THEM FROM ME AT THE LAST MINUTE. DARN IT!! ![]() WHOO HOO! The esophagus looked fine. They could see my reflux, but we knew about that! No biggie! Can we have steak now? OH NO! That would be too easy! It appeared that my small intestine, sits in my center and not off to the side like it should. The doctors decided to continue the test to make sure that my chalk milkshake went through my ENTIRE system correctly. This meant hanging out and then going back for more stretching torture and pictures! TWICE! We were there all day!! Mom played poker on her phone and Gramma brought her hand held Yahtzee, so I gave up and took a nap. Mind you, this mean wearing that lovely backless gown which always flaps open in the breeze all day. At least I was given the ok for lunch. Yogurt and a banana hit the spot. I guess they don't do steak on Thursdays at Stanford. Sigh. ![]() The doctors very carefully checked all the film and showed Mom that LUCKILY, my digestion is working properly, even if it is a little sideways. Thank goodness! This means that even though it was a very hard day, the results were fantastic! No physical issues to complicate my dining experiences! May I have my steak medium rare please?
3 Comments
Gramma
2/10/2012 05:01:45 am
Just wanted to say the the "bouncer" who helped with Wyatt yesterday was Johnny, and he was a very, very nice man doing a really tough job!!
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2/10/2012 01:45:04 pm
Bless you little fellow. You are so lucky to have such a Great Mama and Super Great Grandma... You take good care of them, ya, hear! ...We love you.....
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10/10/2013 02:57:33 pm
Interesting information on this blog, thanks
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AuthorMy name is Wyatt Hawkins and my Mom and Gramma are helping me share my adventures. Typing isn't my thing....YET! Archives
November 2017
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